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Originally Posted by wildberry2277
I having some problems lately and I may admit that I am a little embarrassed to mention this things… I have been having these crazy things happening to my head… I will be fine one second and two seconds later. I am in this tunnel vision.. It has been going on for several months now… Its kinda like I am high and everything is going really slow but I am completely conscious .. Now here comes the embarrassing part..  Please don’t laugh at me… When I wake up from one while I was sleeping I realized I have peed myself... .. and I don’t understand what is going on because I will wake up in this tunnel vision type thing and then two seconds later snap out of it… And be fine.. but I am very tierd afterwards and I will go lay down and sleep they are very exhausting to me… I don’t know if it’s a seizure or what.. and I am to embarrassed to bring it up to my doctor.
I am also afraid I am going to slip in to some kind of coma  … Last November I slipped into a coma shortly after I was told to stop taking my meds and I had to be completely off them or they would not do my other rib rescission a few days later I ended up in the ER for 3 and half weeks with no recollections of what happened for the 2 months before I wound up in the ICU… But during the time of the coma I can remember people coming into say there last goodbyes (so hard!!) , what they were wearing , and I started speaking German which I haven’t done in years… Every time I have one of those seizures I am afraid I am going to wind up in the ICU u again and die… I come close to dying 3 times… My EEGs said I was brain dead…. I am glad they never told my mother that because I told her I never wanted to be laying there in hospital bed the rest of my life and to pull the plug… 
DOES ANYONE HAVE ANY ADVICE OR SIMLIAR SITUATIONS…??? I am so scared to death… And my family chalks it up to my medications and that I am taking to much at least in relationship to the tunnel visions and high feeling… As fair as the seizures they have 2 thoughts either it was a major reacation to the withdrawal symptoms and Lidocane overdose.. even though I had nothing in my system and I wasn’t even using the patches at the time I ended up in the ICU…
Also does anyone have any thoughts on what extended relief pain meds work best for u… Please let me know right now they have me on avanzia and it really really really is not working…  I am crying on a daily basis every since the change…
Also what are u taking for sleeping meds... I am going on 4 to 5 day benders with no sleep at all it gets so exhausting. Does any one have any ideas for sleeping meds? 
 Also i had great results or my SCS... Well not great but good... I was havin alot of trouble during the day with nausea but during the night i got good qualitie sleep... Which i havent had in years.. So that is postive...
I could really use advice about:
Tunnel vision possible seizures
Coma
Sleeping meds
Extended Relife Meds |
Dear Wildberry,
What you are going through is not familiar to me, but the experiences you have been having sound both scary and interesting. Once you become used to them perhaps they will not be so scary in and of themselves, but the part about Coma does sound extremely scary. As Brokenfriend is well able to tell you, God watches over us, and if we believe on Christ, there is nothing to be afraid of, even in dying. As for going 4-5 days without sleeping, this is nothing new to me. I do become delusional after 7-9 days without sleep. I now sleep well about every other night, with the use of Clonazepam and Lunesta 3 mg. A word of advice re Lunesta: if you think it is not working at all, trying NOT taking it with or after meals. To me, this means, if I eat, wait a couple of hours before taking it [at least] or take it 30 mins to an hr before eating supper. Darvocet works for me as extended relief of pain, but my pain is due to spondylolesthesis [one vertebrae (I think it's vertebrae) pushed up over another and needing surgery]. How often do you experience the tunnel vision phenomena? Oh, like one of the others who responded to you herein, I, too, had an awful experience with Seroquel, even at low dosage: overly sedated and unable to function. However, as also mentioned in one response, people apparently respond differently to this medication. Please PM me if you would like. I would like to hear more about your progress. Caring About You - billie