Hello all! I am new and very excited to be here with you all! I think I've slept a total of maybe 10hrs in the last week so please be patient. I thought I'd already introduced myself too but I'm not sure. I am really here for my daughter and her multitude of health issues but I guess you should know I am not well either. I've been diagnosed for 12yrs so mine is easy to explain. I have Lupus which in turn has given me vasculitis of the central nervous system. Lots of issues as you can imagine. My daughter has kidney disease, endometriosis, scoliosis with lumbar hyperlordosis, rotation of lower spine and countless other issues......It's the severe pain since age 3 that has me lost and confused. Mirinda walks with cane and walker a lot here at home and cannot sit in upright position with out it causing excruciating pain. Tendons in her legs are like rubberbands pulled as tight as they will go, her toes are deformed and that happened around age 7 or 8. I could go on and on but if anyone out there has any ideas I am all ears and eternally greatful! Sorry if I already introduced myself....things really are out of sorts.
Thanks for listening.........
clarity