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Old 09-09-2009, 11:42 AM
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Hope15 Hope15 is offline
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Join Date: Jan 2009
Location: San Francisco Bay Area
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Hope15 Hope15 is offline
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Join Date: Jan 2009
Location: San Francisco Bay Area
Posts: 236
15 yr Member
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Quote:
Originally Posted by Trishann View Post
Hope I noticed that this thread was started back in Feb 2009, and I am guessing that the test did say you have PN because of some of your relies. Did you find out if it was motor, senor, and auto or more than one? Maybe you wrote it down before and I just missing it.

How long ago did PN started, I don't know. I think I had it for a long while but could not figure out what was causing the pain in my feet and ankles at that time. I went to a foot doctor because it got worse and she insisted in farther testing because she believe something else was going on. She wrote out a script for a EMG/NCV Test. It show that I have polyneuropathy (senisor motor) thing going on. This test was taken not to long ago.

How are you doing Hope? Are you able to find something to give you some relief?


Hi Trishann. I went back and read my original post here back when I was four months into my PN. It is now about ten months later. All of the tests including an EMG that I took back then came out normal, so I am still ideopathic. I was never really given any kind of diagnosis. Not too long after that I lost my health insurance for awhile and even though I got it back, it has been quite awhile since I have gone to the doctor. As far as my PN is concerned, I have had some changes. In June I took myself off the gabapentin as it wasn't working for me. My PN has gone from constant pain around a 7, 8 and even 9 to a current lower level of maybe 2 or 3. I used to have body wide pain at all times and now the pain is mostly centered in my legs, especially my left leg. My entire back, stomach and knee caps used to burn on fire, now instead I am experiencing more bits and pieces of pain in those areas during and flare up.

The flare ups come and go and seem to come on mostly at night when I am in bed. I know my hormones flare it up otherwise I can no longer pin point it to any one thing. Things seemed to have changed a bit, but with PN you can find yourself getting better or going right back to your worse period. I just don't take anything for granted and try and get through each day at a time.

Thank you for asking Trish. I hope you too are able to find something that works in giving you relief. Please keep us posted...
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