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Member
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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Member
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
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Dew,
I am glad the script issues have been worked out!
I agree with what has been said here about the wheelchair. I'd explain that you will keep up your mobility the best you can, but that in the meantime you have to live your life somehow with the limits that have presented themselves to you. How are you going to do that? Every little thing in life requires the full use of your legs - how far are you going to get without some help? What if your family needs to go somewhere? Is everyone going to have to carry you places? What if tomorrow you broke your leg? Are they going to provide you with a wheelchair sooner than they would an RSD patient? Probably. That's part of the prejudice against RSD and against people with RSD. Somehow still, a number of doctors think it's as if we want the chair to live in permanently and that we are going to just accept sitting in it all the time rather than fight each day. Do they still think we're a bunch of wimps who won't make the effort?
Let me tell you, it's a struggle for me to get out of bed each day, being on meds, being far less mobile than I used to be. I have the tenacity and mindset of an athlete, always have had, and I still can't beat this thing. So yes, I need help. And yes, I need aids. And no I am no longer ashamed to say that. These tools exist especially to take away part of the difficulty we have with daily living. Why shouldn't we be allowed to use them like anyone else with a serious condition?!
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All the best, Marleen
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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