Hi Miss Gomes,
I am glad that you have found this site because the people are so supportive and informative. I have had symptoms since Aug. 07 and was diagnosed in Nov. 08. I am VERY optimistic about my path with this disease. I have had a few periods where I have been under stress and saw my symptoms get worse. I firmly believe that the right frame of mind and a good support system is key! When I was first diagnosed I was started on Imuran which I take 100mg 1x/day and Mestinon which I take 60mg 5x/day. I had a crisis in January and Prednisone was added to my meds. At one point I was at 100mg 1x/day but now I am down to 5mg 1x/day. I had a thymectomy in Feb. 09. I did not have a thymoma. I have found that my speech, swallowing and breathing have improved greatly since the surgery. My leg, arm and face weakness is still there but not as bad as it once was.
I have three kids 8, 4 and 3. I realize that we have all had to make some sacrifices for my MG. I am no longer working. I did private home daycare but I am no longer to do that. I really just pace myself. If I am going to do something with a lot of walking ie. back to school shopping, I know that I will have to rest for a couple of days afterward.
Right now I am pleased with where I am. I am not my "normal" self but I can swallow and my breathing is okay.
I hope that you get the better soon. I know that I was not a fan of Ensure when I had to have it but I hope you have an easier time with it. Take care ~ Melanie