Hi Miss Gomes! Welcome!

I'll try to keep this short (not one of my strong points).

I've not had a thymectomy (but like Rach would jump at the chance tomorrow if I could). I have a diagnosis of "moderate" MG and take 60 mg of Mestinon every 3 hours, 40 mg of Prednisone alternate days, 150 mg azathioprine daily. I've had Ivig too but the results of that weren't great.

No kids (hopefully someday - I'm 30 so my clock is ticking away) but I work fulltime in a demanding job - I'm a teacher of kids with disabilities and behaviour difficulties. I also volunteer as a Guide Leader and with a few other small local charities.

I am optimistic about improvement, but realistic too. I can live with the way I am now, if you had asked me that question 24 months ago I might have had a different answer.

My Mg was stable for a few years when first diagnosed, but worsened 2 years ago. Once starting the steroids and azathioprine it took about 12 months to really feel strong again.

My speech was impaired when I was at my worst - I used to have to get my pupils to finish reading aloud for me and my voice feels like it's being caught in my throat. This hasn't been an issue since the pred and aza took effect.

My best advice to you is to keep a thorough diary, write down what physical activity you do everyday (even cleaning, cooking etc), what you eat, what you feel like (mentally and physically) and bring it to the doctor's. I did this and realised that the days I felt weak and feel down I wasn't eating bananas - potassium turns out to be a real problem for me but now I know and can do something about it!

If you are worried about the school (which should be understanding) maybe you could print some info off the MGA website and send it with a note. I know as a teacher I would be very open to any way I could help a pupil of mine through a difficult time at home, even if it is just listening.

Good luck with everything and keep us posted!
~Kathy