View Single Post
Old 09-10-2009, 08:43 AM
MissGomes MissGomes is offline
Junior Member
 
Join Date: Sep 2009
Posts: 7
15 yr Member
MissGomes MissGomes is offline
Junior Member
 
Join Date: Sep 2009
Posts: 7
15 yr Member
Thumbs up

Thank you all for responding. I feel a little better today after reading these posts. I also am now on 60 mg of Pred so I FINALLY got some sleep last night. I have a cold, too (caught from my little one). I haven't had a cold in years. LOL But I am in good spirits this morning!

Now to replies:

@Nicknerd: I haven't had plasmapheresis yet. I am actually kind of spooked about it. And from what I read, for a week or two of relief, it doesn't sound worth it. But what do I know?? Do you think it was worth it? Does it hurt? I was thinking of saving that for a crisis or something. I only have problems with swallowing, and breathing at night thus far. O and my neck gets weak at night.

@AnnieB~ Pulmonologist?? I had to look that up (don't laugh guys). This is all very overwhelming. I'm on it.


@Joan~ Congrads on your remission. I can only patiently pray that I see that day. I hope you get better soon.

@Rach73~ What is seronegative?

@Melanie: You summed up what I've wanted to hear, "Right frame of mind and good support system is key". When I found out I had to have my thymoma removed and needed radiation, my world turned upside down. I tried to stay positive and I think it worked. Your mind controls your body. If you look down, you go down. I hope to fight MG with the same mind frame.


@ScotsKat~ Wonderful that you're working. You're a great motivator!!

Ok.. I have a couple more questions if you don't mind:

* Imuran vs prednisone. It seems as though most are on one or the other and then if their symptoms get worse the other is added. Is this the case. And what do you think makes Docs prescribe one over the other?


*Have you all had plasmapheresis? or IVIG? Comments.


Well, I am so overwhelmed with joy that you have responded to me. I wish you all a great weekend if I do not return before then. Rest up and talk to you soon!
MissGomes is offline   Reply With QuoteReply With Quote