Hiya,

Seronegative means that I don't show that I have any antibodies in my blood, either on Achr or Musk. Which means its a nightmare getting a diagnosis! Im also negative on SFEMG (electrical tests). I had a tensilon test, my ptosis resolved for over a minute and my speech resolved for over 5 minutes but the Drs interpreted it as a negative test. I respond to mestinon, but apparently thats not good enough!

Im now waiting to see a Prof. in London at the national hospital of neurology.

Currently my "diagnosis" is Chronic Fatigue Syndrome or Central Nervous system Plasticity. Both of which are a load of rubbish. Neither of these "conditions" would respond to mestinon.

I present as classical MG, its just my labs don't back it up and basically until they do my life is slowly passing me by as they won't give me anything other than Mestinon, which isn't enough. I was on steroids for 8 months and did an awful lot better until it was decided I didn't need them. I would jump at the chance for a treatment of MG, whatever the risk as my quality of life is so poor at the moment.

Love
Rach