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Old 09-11-2009, 01:31 PM
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Riverwild Riverwild is offline
Magnate
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Drum Roll Please...

30 infusions down!

Noproblems, no concerns, all my blood work came back great except for my Vit D panel, while the numbers are up, I have to increase another 1000 units, he wants to see higher numbers. He says I am still dehydrated and said DRINK MORE WATER! (imma gonna start leaking from my pores like a sprinkler!)

We discussed the latest news from Biogen (NONE! ) and even though there are rumors of another PML case emanating from overseas, he had no information for me. I asked why and he said he didn't get a call back from the info line. I immediately sent an email when I got home, chewing them out for not responding and suggesting that they get on the stick and DO what they are supposed to do. Their guidance is that all news will come from your physician now.

When the doc doesn't GET the info, they can't answer the patient's concerns and I want INFORMATION. I reminded Biogen that they make a LOT of money from us and that we are NOT mushrooms and I don't want to be fed **** and kept in the dark.

I bet I get a response... We shall seeeee...

Hope everyone is doing well! I am on the last few days of my vacation and plan to take advantage of my time and fix my leaking toilet!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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