Glad to help you with understanding the difference. I hadn't seen Marleen's post or Sherri's before I post it. lol Those who start cold stay cold, those who start hot may, like you did, turn cold eventually. That "used to be" the criteria for rsd. Skin was hot first and cold later, which isn't true for everyone and I found most people have cold rsd and hot rsd is a minority. I'd have to dig up the stats on my survey again for the %'s.
Sweating, blood pressure problems and such are all due to the rsd wreaking havoc with both voluntary and involuntary systems. We can't regulate our body temperature anymore and get cold or hot when we shouldn't be. I only deal with some sweating at night that is mild but get worse at "that" time of the month. lol I think part of the reason for my lack of sweating as some do is because I'm very underweight now. I know it's hormones making the sweating worse at night near my period. Potassium burns you, seriously? Wow, I've never heard anyone who experienced that...interesting.
Maybe not so much blood pooling...it's the lack of blood flow that causes skin color change for me, but I think it's the excess blood flow, blood pooling in hot rsd though. I have blood blisters, known as petechial hemorrhages, all over my body, have since the beginning that turn into lesions. Even tiny ones take forever to heal. I thought I read somewhere what causes it but can't remember where or when! LOL
Hugs,
Karen
Quote:
Originally Posted by CZZ74
Karen, hi, im so surprized that we would have both components through the duration of rsd- that it can be so extreme in the spectrums. I was incorrect, I thought that whether hot or cold, we both suffered from vacoconstrition. I thought it just changed with the life cycle of rsd. I went through the heat in the early stages. Now with the cold, I still have excessive sweating its a huge problem requiring potassium replacment reguarly, I really try to watch it as nothing burns more than an IV of potassium. do we both have the blood pooling, I understand that our nerve cells literally leek blood. I have had lesions that look like blood blisters, so so painful. If i knew how to post pictures i would show you. Dr. S has told me that our edema is different, its in the nerve cells or rather its the nerve cells holding the fluid and leaking the fluid. the blood goes down to my extremeties but does not return,as my body considers them as lost cause. it still seems so odd to me that the disorder is on both ends of the spectrum vasoconstriction and vasodilation..and I agree we may have them both at the same time in different parts of our body. thank you for you post, hoping you have a good day, cz
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