Originally Posted by alaska49

I too suffer from bad lesions and know how bad they can be.

My first one started on my foot on the incision from the surgery that started this whole thing. The scar had been healed for about a year but then little by little started to open until the whole thing was open.

Every pain you describe is exactly what I feel, stinging, burning, electric shocks, and throbbing.

Sad to say its been 2 years and its still open. The whole lesions totals 5in long by 1in wide and drains about every 2-3 days. Doctors have tried and tried to get it to heal but it just wont and they can figure out why. I can clean it or wrap it as the pain is way to great, I guess I have just been lucky it hasnt gotten infected. My main doctor did find otu there is a neuroma on my main nerve right in the middle of the lesion so he thinks that is why it hasnt closed, they have tried to get rid of the neuroma but so far no luck.

I have also developed other lesions in different places, legs, back, hands. The other really bad ones I had that I was lucky enough these did heal. I had an IV port implanted as I was starting the ketamine and am also in the ER often with flairs and all my veins were horrible so was getting stuck maybe 3-4 times before they got it so the port was needed. Well about 3-5 days after getting it in the incision wasnt healing instead the layers of skin was pulling apart to the point we were starting to see the stiches that were inside. The lesions were bad and was about an inch long, we were all just crossing our fingers that it didnt completly open. My doctor started giving me an antibiotic which I took for a total of 3 months which ended up helping and eventually it closed. When they use the port they still have to be careful as the skin is still very weak so like before they put the tape on they have to cover it with gauze so when they pull the tape off it doesnt rip my skin off.

Thats my story with lesions, like every part of this disease these too arent fun at all.

Niki