Thread: Tysabri Information and Check In part 2
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Old 09-13-2009, 06:00 PM
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Riverwild Riverwild is offline
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Natalie,

I would call your neuro and make sure that he/she knows you want the info when you see him/her, to give them time to get the info. I called my neuro a week previous to my appointment and still didn't get it, so more time may help you to get the info.

I don't know much about the testing, since this just came out at ECTRIMS and I haven't had a chance to read yet. Once I digest the info I will write down my questions for my neuro and call back for answers to that AND the other info on new cases of PML.

(I REALLY hate this sutdown on info from Biogen... I hate that it's entirely possible that the only info we may get may come from their quarterly report to their freakin' investors!)
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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