I was having a nosey around some ALS / MND sites over the weekend, purely as I wanted to know what you were up against.

I found out that they treat ALS / MND with Mestinon, to relieve the fatigue in the muscles. So if you are taking mestinon it maybe that you can continue taking it.

Thanks for the update on that mans father, I was wondering about him the other day.

From what I have read and remembered, there is no specific test for ALS/MND, like a blood test. But I could be wrong. I believe its mainly diagnosed with clinical findings in a neurological examination, so reflexes etc. Also the SFEMG, but as we know this shows there is a problem with electrical activity in the muscle / neuromuscular junction and it doesn't actually tell you what the problem is.

I really wouldn't be surprised if there are people out there that have MG and not ALS/MND. If they are seronegative on the MG blood tests. Unfortunately for us and the Drs, I believe that MG is a widely varying disease, its probably many different diseases that are yet to be uncovered or named.

Sorry I can't help you more.

Love
Rach