rach,

I don't have it anywhere as bad as you do. I too can sit and be ok, but whenever I do to much {like all us MGers} I sort of crash. Where before it was just my eyes, I now get the "heavy" feeling, the high pulse rate, shortness of breath, and pain in my left side, from shoulder to foot. When I lie down the pain gets worse, so I mostly sit. Last night I awoke at least 6 times from pain, even though I took a muscle pill, pain pill and wrapped my leg in a heat wrap. As I stated before, I don't know if MG is progressing or if we all have other illnesses that the Drs don't know about.