Member
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Member
Join Date: May 2009
Location: Pennsylvania
Posts: 221
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Thanks again to everyone for all your help and suggestions!
Daniella, I am sorry you to had issues with the ears and eyes and that no doctor has found a reason for it. For your eyes did you ever see a neuro-opthomologist? I had very bad problems with my eyes also when my RSD went full body, I too felt as if my eyes were going to come out of my head the pressure and pain was so bad. I ended up seeing a neuro-opthomologist who found in the back of my right eye all the nerves were swollan and I had several hemorrages. He couldnt do much as the damage was already done, it has cleared up a bit as in the pain but every once in awhile it comes back. I understand what you mean with the mix of doctors they all have different reasons and solutions for everything, just for my RSD in the past 2 years I have seen over 98 doctors in 9 states all of different specialties so know what you mean about the doctors.
I will listen to all of you and call my doctor. When it comes to emergancies all his patients have a contact # where we call and leave a message and will be sent to his cell. From there he will contact us no matter the time or place, he does have a doc on call if we need help now and he also has talked with all the ER staff at my local hospital incase I am having problems. I have a really hard time seeing any other doctor unless I am reffered by my doctor as I have been to so many and am tired of ending up with idiots who think I just need to suck it up. My RSD has also gotten a little complicated and my doctor doesnt like any doctor touching me until he speaks with them as I can get worse very easily and fast. I understand what everyone means when things get written off really fast as just RSD when it could be something else, it is the doctor I have now that found a few things I was told was RSD was actually something else which I needed different treatment. I am calling my doctor right after I am done writting this and will leave a message and see what goes on.
Thank you all so much, I appreciate getting so much help!
Pain Free Hugs to All!
Niki
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