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Old 09-14-2009, 06:16 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Thamks for updating Shayna! It sounds like you have had a bad go of it lately and I hope that all the garbage is cleared up and you can go forward without any more illness!

As far as the PML rearing it's ugly head and no updates from Biogen, it seems that they cannot keep the news down even if they won't report to us, the patients who keep them going.

This is what a google on the subject brings up today. It seems there may have been one or two more cases since Biogen started treating us like mushrooms:

http://news.google.com/news?q=Two+ne...title&resnum=1

This is an updated chart from Pit (the husband of a PML patient overseas who blogs about his wife's experience): http://chefarztfrau.de/?page_id=716

I still haven't received any info as requested from my neuro yet, but I had a long day after working all night and did not call today like I was supposed to...(sorry for that-we're in winter prep mode here and had six cords of wood delivered and room had to be made in the yard to hold the pile! ...it's too early!!! What happened to summer?)

I am still taking heart from the fact that despite whatever cases are rumored to have been found, that the rate of PML still appears to be below the 1:1000 threshold, and there are a LOT of us who have been on Tysabri for a long time without any signs of PML and that the benefit, for me, outweighs the risk.

Hope everyone's doing well!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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ewizabeth (09-15-2009), Grammie 2 3 (09-15-2009), Natalie8 (09-14-2009), shayna (09-14-2009)