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Old 09-15-2009, 12:26 AM
ConnieS ConnieS is offline
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Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
ConnieS ConnieS is offline
Member
 
Join Date: May 2009
Location: Sunny South
Posts: 210
15 yr Member
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Thanks Rach, Joanmarie and Annie.

Rach: I have been onto that forum too, thats how I got to know all these people. Thanks for checking cos of me, thats so sweet of you. I do know that its difficult to differentiate between all of those, theres just so many diseases that its tough to guess. However, i do agree with Annie that the neuros who specializes in these should know! Else who do we turn to for help? Other wise they shd at least do their best and really listen to the patients.

Joanmarie: thanks for the positive thoughts! I too don't know alot, and thats why have to refer them here. but most of them are so busy coping on their side, dont think they hav time to check back here.

Annie: I tried pvte msging u but cant even find a button! Lol. Why is this so? Thanks so much for the link. I don't think they've given him any mg treatments, other than when he was first admitted. I've posted the full update on him on the original thread.

I went to my first clinic visit today, and understood why some patients give up asking questions. The neuro whom I saw today wanted me to do another blood test just to be sure. I asked what does it test for, and he said its called GAD. I repeated my question, and he just said "this is the only center that does this test. i don't have time today." I felt stupid. Lol. Amazingly the first neuro whom I ever saw (and fired) is the senior of this neuro. I was referred to him as he specialises in neuromuscular disorders. The neuro I fired specializes in epilepsy and general neurology (how general can it be?), and yet he never ever once got his senior to look at me. I had to be referred in from a private neuro outside of that clinic before I could see my current neuro. Just find it a waste of time, not to mention a far cry from what they call efficiency.

Last edited by ConnieS; 09-15-2009 at 01:50 AM.
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