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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi Sugrkiss!
Hello and WELCOME! I've said it b/4 and I'll say it again - even with all of my side effects, I love my pred! It has truly been a life saver!
I was started @ 10 mgs in the hospital. It was doubled until I was @ 80 - 8 days later! I felt AMAZING! I was up and watering my yard and taking care of my family like I used to!
Even on 60/40 pred, my blood sugar has stayed low - it was 79 the other day, but it has gone up to 140 on a few occasions......
I HAVE been down to 15 mgs, but crashed - apparently that is the "magic" number - I know I'll be back to 20 soon. I have been told that I will probably always need to be on a low dose, but as long as I am able to function I am very happy!
I have been told that there is ALWAYS weight gain when you are on pred, so be prepared. However, it is soooo much better than having a crisis. Once you find your magic number things will even out. I know it worked wonders for my Gram - she looked normal after a few years - and that was on the hard stuff!
I am so happy to hear you are feeling GREAT!
Big hugs!
Erin
Quote:
Originally Posted by sugrkiss
So I saw my Nuero today and after they found out how little the Mestinon is really helping, decided to get me on Predisone. This has been a very difficult 2 months. I had no idea I could feel almost normal with meds. I have been living basically crippled, barely able to sit on the couch and lucky to shower without having breathing issues. The last time I saw them was only the second time, and compared to the first time, (when I was diagnosed) I was feeling 100x's better, and told them I felt 80% to normal. Well the first time I saw them, I was probably hours from crises, so I did feel 100x's better. Today my husband told them I was only about 20% of my normal self (which he had observed and never told me, I'm lucky he watches out for me ).
I am very very excited to learn that I don't have to live this way for the rest of my life. I can't believe I may be able to take walks after dinner with my husband again!!!! Thankfully I will be starting my doses at 5 mg, and increasing another 5mg a week until I feel better, but I would like to take a few weeks at the 10-15mg range. Anybody have advise about what dose works for them, and how to combat the side effects? Thank you
Jessica |
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Erin
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