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Old 09-15-2009, 06:55 PM
alaska49 alaska49 is offline
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Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
alaska49 alaska49 is offline
Member
 
Join Date: May 2009
Location: Pennsylvania
Posts: 221
15 yr Member
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it is my pain that keeps me from sleeping, my RSD is full body and internal so it doesnt matter how a lay every part of me hurts so I have to move every few min. to another side.
As for better pain control there really isnt anymore options or help I can get. Being highly allergic to so many pain meds all I have is demerol, then every week I have ketamine infusions which those help greatly. Before the ketamine I was in the hospitals every 2-3 days because of flairs, now though its only like every 2 weeks which for me thats really good. I have tried every other treatment, the last chance would be the coma. My doctor is doing everything he can to get my pain down but mine is never below a 9-10 pain. My doctor has been doing as much research as he can to look for new meds for me to try but so far ketamine, and demerol are my best pain control.

I do take alot of meds all at once to sleep but also for everything else pain, spasms, allergies, ect. I have been taking all those meds for about a year and havent ever had a problem with them reacting to each other. I am very careful on what I do take together, and my doctor as well monitors my meds on what should be taken together and what not.

I am doing the best I can to keep it together, but as I loose more and more sleep things just keep getting worse. I just hate not having energy and being so tired but unable to sleep, sometimes I just want to scream.

Thank you for your help!

Niki
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