Quote:
Originally Posted by MAGLADY
I wonder if you are still on this site..funny I have MAG too and have actually stayed on Lummi island.
Write back if your out there.
Maglady
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Hi Maglady,
It's great to hear from you! How are you doing? How long have you had anti-MAG neuropathy? It is a bit over 7 years for me. I am seeing a neurologist at Virginia Mason in Seattle. I'm not sure what treatment to try next. IVIg worked for a while, but I've been off treatment for almost 2 years and the numbness, burning, poor coordination & fatigue just keep slowly progressing. I need to get started on something that works. Hope to hear from you soon. Where did you stay on Lummi Island?
NancyKay