Thread: Anyone with Anti-MAG neuropathy?
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Old 09-16-2009, 01:32 AM
NancyKay NancyKay is offline
Junior Member
  
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
NancyKay NancyKay is offline
Junior Member
 
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
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Quote:
Originally Posted by MAGLADY View Post
I wonder if you are still on this site..funny I have MAG too and have actually stayed on Lummi island.

Write back if your out there.

Maglady

Hi Maglady,

It's great to hear from you! How are you doing? How long have you had anti-MAG neuropathy? It is a bit over 7 years for me. I am seeing a neurologist at Virginia Mason in Seattle. I'm not sure what treatment to try next. IVIg worked for a while, but I've been off treatment for almost 2 years and the numbness, burning, poor coordination & fatigue just keep slowly progressing. I need to get started on something that works. Hope to hear from you soon. Where did you stay on Lummi Island?
NancyKay
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