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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Hi, I have this love/hate relationship with prednisone. It has caused me a whole knew file of medical problems, and yet, it makes me feel like "today, I'm strong enough to make dinner" If I didn't have it, I'd be bedridden.
I started out with 20mg in the hospital, and then went up to 60, and then down to 30 for a many months, and then to 20mg. For the longest time, I couldn't go below twenty with out my breathing tanking. After a year of weaning down, and going back up, weaning down again, I'm at 10mgs, and have been holding at 10mgs for the last 10 months. (oh, and my dosages have always been daily, for some, it's every other day)
I've been on Prednisone for over 5 years now. I wasn't given the choice of how much to start out on, nor was I in any way shape or form informed about Prednisone," just take this, and let me know how you're feeling". My first neuro wasn't very talkative, and had a very thick accent. She was nice and all, just not one to tell her patients what to expect.And I look back, and she really didn't know as much about MG, as she should.
I now am with a Neuro-Muscular specialist, and I love him, he is a director of the MDA in his city, and has several MG patients. He knows his stuff. Oddly enough, I had the option of having him as my doctor when this all started, but I would have had to wait a couple of months to get in to see him, and I didn't want to wait that long, so I choose who ever I could get into first, and the fastest in his practice. I should have waited, and seen him, causeI wouldn't have had to wait so long for certain meds.
Knowledge is very powerful in controling your health, so read as much as you can about Prednisone, and your illness/illnesses. And most of all, Listen to your body.
best of wishes
Love Lizzie
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