I'm so sorry you've had such bad experiences with neurologists and pain mangement drs !

I've had both good and bad experiences with both types.

The dr who diagnosed my RSD/CRPS was a wonderful neurologist who was also treating my epilepsy. He had a lot of knowledge about it and knew almost right away what was going on-- after years of me being in pain. He treated the RSD/CRPS in my stomache with something relatively experimently (Botox), but I was willing to try it and it helped. However, after a while, we both moved and he is no longer my dr. My current neurologist is good, also has knowledge of RSD/CRPS, but prefers to not to treat it (although she did confirm the diagnosis). She wants to stick with treating my Epilepsy and other neuro issues and let a pain management specialist deal with the RSD/CRPS.

*** please know that I do not blame my current neurologist for not wanting to treat the CRPS/RSD--- she has her hands full with my epilepsy and genuinely wants me to recieve the best care for each issue, and I admire her for that ***

I am now on my 3rd pain management dr. The one I was seeing previously was at a large and "one of the most renowed medical centers" in California. However, that physician basically discounted both neurologists diagnosis, seemed completely unwilling to do Botox in the mannor my diagnosis neurologist did (hence, I had complications I'd never had before) nor took the suggestions of the residents or listen to anyone else's ideas. He was somewhat condescending to me, and didn't listen when I complained of side effects, flares, etc and was only avaliable one day a week. What I learned from that, is that ultimately, that teaching hospital and "renowned medical center" wasn't the best place for me. My current doctor, not at a teaching hospital, seems a lot more pro active, treats me with compassion and really seems to listen to me.

I am so sorry your having to go through all of this. It is so frustrating, but keep trying. There are good doctors out there-- but sometimes it seems to take forever to find them !

L2L