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Old 09-17-2009, 07:15 AM
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darlindeb25 darlindeb25 is offline
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Join Date: Aug 2006
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15 yr Member
darlindeb25 darlindeb25 is offline
Member
darlindeb25's Avatar
 
Join Date: Aug 2006
Posts: 744
15 yr Member
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I have some who know I am celiac, some who do not, Quest Labs said I do not have the proper genes for celiac. One day, they will realize celiac is much bigger than they think now.
I have to edit this post. I have been doing a lot of research, and now I know, celiac disease is a very tiny part of gluten intolerance. Gluten intolerance is much bigger, and much less is known about it. So many of us were given negatives on celiac disease, and told gluten isn't our problem. It's simply not true. What needs to be done, is more study into gluten intolerance, and a method of testing for it.

Neuropathy can be every bit as devastating as celiac, especially if you do not know that gluten is the problem.
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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