Hi Brittany,
I'm sorry you are having such a painful day. I do understand. I live in PA and the weather has been crappy. I have all the same triggers as you do but anything too hot also sets me off. The thing that does not bother me yet are my bed sheets. I had one episode of pain with them the other night but so far that is it. I use all the same things you do to help. I actually brought my Uggs 1/2 size big to wear slipper socks with them. Unfortunately, I don't remember what it feels like to have a pain free day anymore. My amount of pain seems to be growing. Well enough of that, my complaining isn't going to make you feel better. Try Chocolate! Hope this weather breaks so and you feel better
Hopeful
Quote:
Originally Posted by bbpoolgurl
How is everyone else's day going?
I really hope that everyone is feeling better than I am- the weather in the DE/PA region has not been the greatest (rainy, humid, breezy), and has totally set me off. I had to go out last night to do errands (my mom took me to fill my meds, and got me something to eat. When I am with her, she always makes sure to get me something to eat, because she worries I am not eating enough).
Being out in the rain and gusts of wind set me off terribly, and now I am pretty much in bed for the rest of the day. I was going to fold clothes, but I just don't have the energy/am in too much pain. These are the days that it really sucks.
Out of curiosity, what are other triggers that everyone else has experienced besides cold? For me, it's water, cold, blowing air of any kind, touch, and the bedsheets. We have come up with many inventive ways to help beat the triggers- thick hiking socks, warm UGG (or the like) boots, Scuba booties and pants for swimming in the water. What have you done to help you? Any other suggestions on what I can do to avoid these triggers?
Anyway, just wanted to wish everyone else a pain free day- I really hope everyone else is doing better than me.  |