Hi Coach,

I'm sorry you have been going through this for so long! PCS is frustrating enough as it is without adding the other outside factors into it. I'm so sorry you lost your job. My work just called and told me they finally filled my position after me being out 3 months. They were willing to hold my job until September 1st, but after that, they couldn't wait any longer. I'm glad they found someone so they aren't struggling without me, but it's tough to accept that anyway. It's hard to lose the roles you are so used to playing.

It seems like you've tried a lot of different things to get improvement without much relief. I'm sorry to hear that. The Nuvigil I've been on for almost a week kind-of helps my fatigue. It gives me 5-7 hours where I don't feel like I could sleep, but then there is a pretty intense crash around dinner time. I am allowed to take a 2nd one if I need to during the day, but I'm afraid I would never fall asleep. I also take Amitriptyline at night to help me sleep/antidepressant. I take Treximet when my headaches turn into a migraine and that helps a lot to reduce it back to a normal headache, but it wipes me out a lot.

Are you taking any medications to help any of your other symptoms? My neurologist is hesitant to even discuss newer treatment options. He's a headache specialist and does a good job staying on top of my case and trying to treat the symptoms I have. I think that head injuries are so complicated, and the technology to figure them out and treat them are really limited.

I'm only at 3 ½ months right now, and I worry about how long this is going to last and how bad things are going to get, but I'm glad to not be alone. It's very comforting to be in this group with like minded individuals. I know what you mean about being in a quiet place and resting. My amazing husband gets the kids on the bus for me and lets me sleep in and wake up to an empty house. I am alone until 3:45 when my 2 kids get home. As soon as they do, the stress and noise starts and my medicine crashes. That's the trouble time!

Thanks again for your encouragement and advice! Hang in there!