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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Hi Joanmarie!
Hi Joanmarie! They smile cuz' I bring them pizza! LOL! Actually I am just so grateful to the whole staff @ the Methodist
I love your ideas as well! They are great!
Do you mind my asking why you are afraid of IV IG? Have you has a bad experience? For ME it has truly been GREAT! I don't even have to premed b/4 - just drink lots of fluids and I feel 100% It even gives the appearance of a mini eye job! LOL!
As for the pred., I am so happy to be going down! My entire body is swollen and it is starting to give me major anxiety......Don't get me wrong, I'm still VERY grateful for it, I just need a break for a while!
40/20 should do the trick. I may be a little weaker for a while, but I am blessed enough to not HAVE to work @ this point, so I can stay on the sofa all day if need be!
How are you doing?
THank you for the ideas! I really appreciate them!
love,
Erin
Quote:
Originally Posted by Joanmarie63
Only you Erin, I bet the hospital and Dr staff smile when they know you are coming because your attitude is so inspiring!  I like DesertFlowers idea. Mints or hard candies to suck on is always a good idea because that way if they have weak facial muscles they can just let the candy "melt" and the flavor last a long time.
As for the IVIG and Pred.. I can't take pred as I react to badly to it and I am afraid to try the IVIG but if I go into a crisis I will try it  Now when I did take Pred many years ago, I was on 60 everyday for a year and then weaned ogg it for a year, then remission
Good luck my MG friend |
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Erin
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