Just passing by for an update and to offer hope and to say a big thank you to this forum. Now my pain and numbness have gone and energy levels are greatly increased although I have to still rest and its fab to sleep through the night again. Thermal threshold tests also confirmed an improvement. I get the occasional pins and needles in my feet if I am run down and move off my diet. I take alpha lipoic acid, Q10 and acetyl l carnetine daily, no caffeine, no alcohol, no sugar, regular protein in my diet and lots of water and I did a course of acupuncture. In retrospect I wish I hadn't wasted my time with the traditional medical model although I had to but it only told me what I didn't have and did not deal with whatever was going on for me.
My history was
My history is that I had tiredness, pains in my wrist and numbness in feet from summer 07 and my GP said its having 2 young kids (2 and 4) and wear and tear (am 45). June 08 I was in the park and had numbness from knees down both legs to my feet and in my hands, it happened just like that. I could feel but like wearing socks and burning feelings. I was exhausted for a few months and just got thru the day but wanted to sleep the whole time. I can't let the boys sit on my lap anymore as my feet get even number and more painful or if they knock into me it sends jars of discomfort. The tiredness has got much better tho am aware of energy reserves that run out. My wrists 'go' if I pick up heavy bags, right was out for a month in january after lifting one of the boys where it was continually uncomfortable and burning. I had tests for diabetes, thyroid, mri, lyme, b12, kidney, liver, choloestrol, hep c, hiv, ssep nothing so the neuro explained the mind body link at my consultation over xmas(!) - he then did a thermal test and said I had small fibre neuropathy. 2 weeks ago he emailed to say I had anti GQ1B IGG gangliosides which are associated with a rare variant of guillan barre called miller fisher I am confused as I have none of the symptoms I have found on the net eg eye problems or ataxia or areflexia. Does anyone else have something similar please and could you recommend any treatment?
Thank you