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Member
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Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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Member
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
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never told you guys?
I'm stunned I never told you guys.
In Feb was the "fusion". In March, my ENT gave me dexamethasone 1 (ONE) mg/ml to use, two puffs each nostril twice a day, with antifungal nose spray.
By May I saw my cheeks had changed shape and I looked like a different person. I went to an endocrinologist who did cortisol and ACTH levels and found me to be suppressed at both adrenal and pituitary. I then went to my old sinus guy, who graduallyd decreased the nose spray. I was at normal in the autumn, but then the mail order sent the wrong dose, and my adrenals stopped again. I argued with the pharmacy, and eventually mailed them the bottle to show them they'd blown it. They apologized, and again I had to be tapered. Then I called them for a refille this past week and read the botte closely and saw that once again it was the ONEmg/ml, rather than 1/4 mg/ml dose. My doc ordered the cortisol, and it's zilch. And then I had the ACTH, which I won't know about til tomorrow. Meanwhile, I'm going to have to squeeze in the endo before I leave. Hope he will just talk with me on the phone.
Can you believe this? And then...of course, I didn't fuse.
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LizaJane
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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