I'll be thinking about you and keeping you in my prayers, Nancy! I know how hard it is when this monster spreads. Mine started in my left leg and then spread to my right arm after another injury and to the left arm at the beginning of this year. Thankfully, after ruling out everything else, my Doctor has always realised that it was RSD as it was so obvious but unfortunately, no treatments have really helped so far for me.
I hope you can get your Dr to see sense and get the help and treatment you need!
Please keep us posted!