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Old 09-22-2009, 05:42 PM
NurseNancy's Avatar
NurseNancy NurseNancy is offline
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Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
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hello and welcome to the board.

you've gotten some great advice.
i was dx'd at 53y/o in '03. in '05 i had to give up my nursing career because i couldn't keep up with the physical demands and 12hr shifts.

i've learned several things. to be gentle with myself. and, to take each day one at a time. i've also learned to expect changes but to adjust to them the best i can and with the help of my "team".

i would suggest that you get a 2nd opinion. that's always a good idea when you have a serious medical problem going on. also, start to keep a medical file on yourself. get copies of test results and copies of your mri's. if you ever see another dr they will want to see for themselves.

i was dx'd with 2 O-bands on my spinal tap and lesions in my brain and spinal cord. however, i was dx'd first with the mri's alone. you don't have to go thru another LP if you don't want.

are you on any of the MS drugs? some of us aren't on meds but from what i've read it's best to start a tx early to help down the road to decrease disability.

be sure to keep your personal power. be your own best advocate. and slowly pick a bunch of drs that will work with you as a team. YOU are the team leader.

there's a difference between fearing the future and being prepared. if you have a disability find out how you can work with it to make your life easier. ie: using a cane for balance. you might want to consider having life insurance because you have a baby. try to think thru what you might need to protect yourself and your family. sometimes doing things while you're young is easier. if you work consider long term disability insurance if your business offers it. things like that may give you peace of mind.

sorry i've been so long winded. just a bunch of ideas and things that i've considered.
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Judy
trying to be New Skinny Butt
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You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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