Erin, I'm sorry you have to go back in. Can't they do a home infusion, at least once and a while?

This is the thing with any illness . . . the quicker you and your family "accept" what comes along with it, the sooner everyone can be okay with it. That's easier said than done, I know. But this is your "new reality" and it's more than okay because it is keeping you ALIVE and well. Isn't that the important thing? It's everything, really.

My Dad spent the last 16 months of his life in various hospitals, transitional care facilities and nursing homes. I would much rather have had him at home but that would not have been good for him. I'm grateful he lasted as long as he did - he suffered for 48 years. I'm saying this because it doesn't matter where people are - love is the only important thing. And that transcends time, space and death. Sorry, being a little maudlin. In that kind of mood.

Just get better!!

Annie