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Old 09-23-2009, 09:29 PM
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sugrkiss sugrkiss is offline
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Join Date: Sep 2009
Location: Orange County, CA
Posts: 112
15 yr Member
sugrkiss sugrkiss is offline
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sugrkiss's Avatar
 
Join Date: Sep 2009
Location: Orange County, CA
Posts: 112
15 yr Member
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Thanks for your concern...the problem is these are the symptoms I have been having since my son was born, also when I was DX (which is only 2-3 months since the onset of ANY symptoms). With my meds I am ok, but my arms tire within 2-3 minutes of using them, and I start to feel the strain in my diaphram if I am trying to talk and stand at the same time. I read a post the other day describing the symptoms of MG as a kaliedescope (sp), and mine have started changing since the Pred. I just upped my dose to 10mg. I started at 5mg last Tuesday, and have been instructed to up it every week until I get to a dose I want to "try out" for a while. I feel since I started the Pred, like the Mestinon is giving me less relief, also, where it was lasting 4-5 hours on a "normal" day, it's only lasting 3 max, and I'm also maxed out on my Mestinon dose for the day...I have noticed slight improvement since my surgery...I used to get a swollen lumpy feeling in my throat very often, and I just realized I haven't had that in a while...but my major concern, is that I have my infant at home with me all day, and there are times in pretty much everyday, that I can't pick him up from the floor, and get him up to my chest. Also, I am due to return to work next week. I have an awesome work from home job, so I really want to get back to it, but with that and the baby, I need to know what I can expect the Pred to do for me. If I should be feeling back to my old self, then I have a long way to go, but if it will just extend the relief of the Mestinon timespan, or even reduce the weakness a little...I just have want to know how to proceed with my life. My Nuero did say I could go on Disability if I needed to, but I feel like I can get by as long as I have an idea how long till I'm better, or if I'll even get better.
Sorry for such a rant...

Jess
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