Quote:
Originally Posted by Mylastnerve
I am following this thread as well....I am considering an MVD, and cannot find decent, thorough, first person descriptions of if, just understated PHD-speak, for what sounds like a confounding and very difficult disorder.
If you don't mind, I, for one, could really benefit from what you have to say, as I try to make my own critical decision regarding surgery.
Thank you for anything you can share. It could really help.
Gratefully,
Mylastnerve
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MaryBird Perkins in Baton Rouge, La does Stereotactic Radiosurgery which like Gamma Knife is a bit more precise. I've heard several people who had one treatment and never were pain free. I tried that first, but I had more a-typical symptoms than clearly TN; but the doc I saw in FL swore that the MVD would get rid of all my pain. So, if you are sure it is TN, please call Dr. Waguespack in BTR and/or oncologist Dr. Rene Levine. There was also a news article done about it on their local television. I got to talk to a woman named Susan who had the surgery about 5 or 6 months prior and was still pain free. Non invasive, you have to have about an 8 lb. halo connected to the skull so that they can get precise measurements. If anyone with TN has a chance, try this before you have an MVD and discover next you have AD.
My life is a living hell because of an MVD; I hope this gives you some more ideas.
All three branches of my face right side are constant pain 24/7. It is very difficult to live this way and I ask the Lord to take me, but I think he has another purpose. He hasn't revealed it to me yet.
God Bless, I hope you can have this much more simple procedure, a bit of swelling in your eyes but no long term scaring or anything like AD.