Ditto on what Kate said about the Pred. It's not candy and a patient should not be left to up their dose as they "feel" like it, since it takes awhile for Pred to kick in. What if you are getting too much?

I need to ask, why are you on Mestinon Timespan? Why doctors think that is so special, I do not know. Most of the MG experts will NOT give it to patients because it does not give you a consistent dose of Mestinon. Why not take the regular Mestinon?

I'm being a little tough here because you are NOT doing well. And I'm concerned that your doctor is either out of his league, doesn't know what to do or may not know how badly you are doing. I hope you will or have called him.

A 2nd opinion from an MG expert is not a bad idea.

I have dreams sometimes about not being able to hold my dog due to MG, who is a small shih-tzu. If you can't even pick up your child, you are not doing well. Again, I mean close to a crisis not doing well.

Will you please call your neuro and have a conversation about how you are doing? And, to continue to be blunt, working seems like something you cannot handle just yet. You need to give the drugs time to work!

Annie

And what if you have a crisis when you are at home with your child? And you can't talk or move? You not only need help from your neuro but a game plan for the "what ifs" of MG. If you stop breathing, there will be no one to help. I'm not trying to scare you but make you realize that you are in deep trouble right now.