Quote:
Originally Posted by allentgamer
CZ that was becoming an issue for me when taking the ms contin. I didnt realize it was tied to the pain meds until my insurance was cut off, and I could not get any more meds.
It was hell going through the withdrawals, but once that was over, the fog was clearing, and my mind was becoming clear again. It isnt as clear as without RSD, but it is clear enough that there isnt talk of me not able to make decisions anymore.
For about a year I had no pain meds at all, and life was very hard. I think that was when I began to realize I had to get a grip on the mind over pain thing. Once I had medicare I could get pain medication again, but I only take a norco in the morning, and maybe before bed for pain. I can double up on them for the bad days, but drop back down when the pain drops off as well.
I still have serious pain that makes walking, and daily tasks very difficult. But also realize there is a trade off with the pain medications. To have the brain fog, or to be cognizant of what is actually going on. Even though you think you are fully aware im afraid to say that may not be the case.
Once I had been off the pain medication for a while, my family and friends were welcoming me back to the world out of the blue. Some friends were asking me what happened because they hadnt seen this me in a long time. It was a real eye opener.
I know the pain, and I know how hard it is to deal with, so dont let me talk you out of your pain meds. That is not what I am trying to do. Just letting you know it isnt you losing your mind so you dont have to worry about having anyone take away your decision rights.
If my insurance hadnt stopped I would still be on the heavy meds LOL! I actually am glad it stopped no matter how much it hurt me. It helped me come to terms with this RSD, and helped me to kind of learn to balance how much activity I can do before it is too much. Plus learn to cope with a lessor pain medication so I keep my brain clearer.
Sometimes though the pain is sooo great I think about asking the doctor for those heavy meds back, and I know he will prescribe them in a heart beat. Then I hear my wifes voice telling me how much she enjoys talking with me, and hanging out with me now that im not on those medications anymore, and I grit my teeth, take another norco, and tell myself I can make it through this. It hurts but I do make it.
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WOW - I didn't know that you had NO meds for so long. You are a really strong person for making it through that. Kudos to your family also, as I imagine they played a role in supporting you through that tough time.
I have never been prescribed a time release med, like MS contin or oxycontin. My PCP doesn't like writing them because they are so addictive. I did start the Fentanyl patch in mid-July, though, which helped me a lot because it took me through the overnight hours. I take Perc and Methadone for breakthrough, but lately my dosages seem to keep going up, up, up. My head pain seems to be increasing all the time. So I am really interested when it is explained that the meds will INCREASE pain as they become more and more ineffective. I admire your strategy Allen, and think that it might make sense for me, also - the meds don't seem to work anyway. I don't believe I've gotten too brain dead, but I should check with my husband to make sure - he may have a different opinion on that one.
My therapist has talked to me about "mindfulness," and using different breathing techniques to try to work through the pain of my headaches. I KNOW that breathing did NOT work during labor with my babies (who were they trying to kid?!). But it may have merit now and it's as good a time as any to try it.
XOXOXO Sandy