I'd encourage you to take a peek at the different forums you might think could be part of your issues and even, some that you might be afraid to explore?
Often times, IF CAUGHT early? LOTS of problems can be alleviated or even avoided with the persistence you are showing.
It took me fourteen months from initial diagnosis to a different one? And it took a heap of tests, [MRI's Cat Scans, Blood Work ups [MANY] and a spinal tap] I KNEW that things werent' right and going downhill and faster than I liked. BUT, by keeping at it? And getting second and third opinions by 'specialists' as I zeroed in on things that I was diagnosed and treated!
You can learn a LOT from reading about the different issues. You learn what questions to ask and also about what tests are done [these are usually in the 'sticky's at the top of any forum] Learn 'doc speak'! Docs don't speak 'people speak' for some unknown reason this is a lost skill.
Yeah, those balance issues? Nothing like falling HARD then having to have EMT's have a problem in extricating you from a VERY small bathroom? NOT FUN! And also a trifle embarassing? As I was going into the bath to shower???? Need I say more? It wasn't 'pretty'.
This is ALL SCARY rite now? But keep faith that testing, and maybe more testing will determine your problems. Learn about possible causes and then be a trifle more informed to ask the KEY questions of docs about what all the fruitcakes is going on! LEARN, turn energies there if you can, as that can help you get the key info from docs you need to get treated.
I truly hope it's something simple? But I'm guessing not. Take a look at any and all meds you mite be on and read the 'fine print' [as I call it?] on the side effects...then if you are on more than one? Call both companies [800 phone#'s are WONDERFUL!] and check out if they are compatable or not... sometimes its that simple.
Web up 'prescribing information insert drug name here'
I hope this all helps, but don't give up on your instincts that 'something isn't RIGHT!'.
Let us all know how you do and soon, please - j