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Old 01-08-2007, 01:20 AM
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Aussie99 Aussie99 is offline
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Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
Member
Aussie99's Avatar
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Default Hi Kathy

How did you go with Novartis? It seems that certain things work for you, but after a week or so you get a bad reaction. Have you thought about rotating things around. Say on Monday have the Carnation,. Tuesday the Ensure, Wednesday the broth and so on...?

It just seems that having the same thing day after day is causing your nausea and intenstinal pain after about a week.

I know there are all sorts of things available in Australia but I don't know if it's basiaclly the same stuff. I am finding it difficult to comprehend that the nutritionist hasn't been abale to come up with something for you, and you are having to go through this.

Can you ask your doctor if you can be directed to other patients with gastroparesis so you can get some opinions & information from them?

When I go see the SF specialist over here, the waiting room is packed. She is the only one who does autonomic testing. I often wonder why can't we register somewhere where we can get in touch with each other to discuss like issues. I mean I can't be the only person who has autoimmune PN in the whole of Sydney. Yet there is no way for us to come together to communicate, even if it's only by email.

I want to offer more, but am unable to because i don't know alot about nutrition. Have you thought of talking to another nutritionist for more information?
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