You all are soooo cool! We are so much in the same boat LOL. I read everyone's posts and could have written almost every line when it comes to pain, paranoid feelings, anxieties, etc LOL!!
I bet it is the same when you all read these too.
One of the things I cant stress enough is dont mess around with your pain medication dosages. Like taking less without talking with your doctor. The withdrawals are not fun, and I wouldnt want anyone to go through any discomfort they dont have to. It took me 3 months before I even felt anything I could call normal, and the first month was something that I could only compare to a type of hellish near death experience. So please make sure you talk to your docs, they can work with you making it withdrawal free if that is your goal.
I think everyone will find their own path to dealing with this pain we call RSD, and medication has it's place. So again im not trying to talk anyone out of their pain meds. What happened to me was something God had planned for me. He knew I could handle it, otherwise it would have been different.....I think LOL. I do know I came out of this stronger than I was before, and with a sense of purpose like never before.
With something to share with my RSD family. He knows where we are, and he is right there with you. Did you read what I said...He IS right there with you. He didnt heal me, he gave me a peace in knowing he is right here making a way.
One of the things that work for me, imahotep uses, and it works so well. I call it pain distraction LOL
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I think everyone who his sick and disabled needs to find passtimes to occupy himself. Even things that can be done on bad days if possible. The internet is a lifesaver for me but I also have a sedentary hobby which can provide enjoyment everyday. My current research is fascinating stuff and keeps me occupied for hours on end.
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Plus there is this one nagging thing we all share....
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I need to work again, cause I need to find purpose in my life. I know that I have so much to offer I'm just not sure how to go about getting started. Any suggestions would be welcome.
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I have a suggestion
Since we all are on the same page, and it seems we all have some good talent. Plus we all know our limitations LOL! We should look at putting together an online biz.
Most groups come together to organize some type of awarness group. Well thats all cool and everything, but we could use our disabilities as a real marketing tool. All we need to do is find what biz.
