When I was told I could longer drive due to the short term paralysys / paraparesis in my legs, fine I bought a mobility scooter, now that the paralsys is effecting my arms and hands as well, there goes my independence, my beloved wife has to take me everywhere.
I can no longer use my scooter as it presently is, as I would be unable to control it if an episode occured.

Also I have a mobile / cell phone for emergencies now I cant use it and will have to have it modified to work on voice recognition.

It seems to me that I take 1 step forward and 2 steps back.

I am receiving help and support from paraquad, and without that I would be lost.

Sorry if I sound negative, because I dont mean to I just need to talk to people who know what these diseases do to you because unless you have walked a day in my shoes you haven't got a clue.

Most of the other problems caused by this disease are fairly well under control, and for that I am truly thankfull.