Hi
My 16 year old daughter had the 3 day 4 hour infusions back in July, she has been pain free up until a few days ago, she is in a flare right now, but not as horrible as they have been. She had them with Dr. Kirkpatrick in Tampa, we went for her 8 week follow up and she is in partial remission. I think she is in a flare right now because she had a fall on the tile floor, and unfortunately after the infusions, you have to be very care as not to injure yourself.
I don't know how old you are, but my understanding with the ketamine, is that if you are younger the likely hood of hallucinations usually don't happen with kids or younger people. My daughter was uneasy during the treatment, but Dr. K. made sure that it did not get bad. He consistantly monitored her and turned it off for short periods of time. As long as you don't have high blood pressure, any kind of heart condition or other underlying medical conditions you should be ok, but with all treatment there are risks. My daughter had to be cleared by a cardiologist. I think she will have to have boosters due to the fall that she had. She said she would do it again if she would go into full remission. She mentioned today that her life was so good up until this week. So you have to think about what your quality of life is right now and if you would try anything to make the pain go away.
My prayers are with you. I hope you are able to make the right decision.
I also hope you have some pain free days.
Sandy
Quote:
Originally Posted by bbpoolgurl
Hey everyone, hope everyone is having a good day. This week has been rough, as both my fiance and I came down with the dreaded swine flu. Guess I won't be needing that shot after all!
Anyway, I wanted to ask those of you who have had the ketamine infusions about them. Did it work for you? How long do they take? Any side effects? How long were you in remission? I would like any and all details about this.
My doctor said that if I wanted to do these, she would write me a referral to the doctor out of Drexel that does them. She did say she has concerns about them, as she has other patients who do them, and they have reported terrible side effects to her. She said they have told that while getting the infusions, they have horrible hallucinations of being attacked, murdered, raped, etc. Is this true? Or is this only for certain people?
How well does this work, and would you recommend it or no? I want to find out anything and everything about it, so that I can make an educated decision. If this works for others, then maybe I need to consider this instead of the SCS, especially if I want to have children. This would be a better choice, overall- and if a few hours of hallucinations means months being pain free, then maybe the trade off is worth it.
Thanks everyone!
|