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Old 01-08-2007, 09:53 AM
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BEGLET BEGLET is offline
In Memorium
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
BEGLET BEGLET is offline
In Memorium
BEGLET's Avatar
 
Join Date: Sep 2006
Location: So Cali
Posts: 661
15 yr Member
Default Aussie and Mrs.D.

I'm printing out your messages right now - thanks for the suggestions... As soon as the busines day starts out there I'm going to call Novartis and see about the powder - but I think your completely right about the small bowel problems Mrs D.... I have VERY good docs except for GI doc - and cannot find a motility speicialist...... the doc who diagnosed me with Gasptroparesis has moved out of state but even five years ago motility tests show very slow gastric empty times... and other docs have said after only listening to my intestines thats its obvious my problems are from lack to motility due to the neuropathy........ (the new GI doc I was just referred to wants me to start all over again with Gastric Empty Study, then barium swallow etc etc.. not the small bowel and other colon tests that should be done but I dont think he's familiiar with.... (but I have to work with him - he's best "buddies" with my GP - who is great) - so must tread very carefully because its taken years to find my neuro and GP - who welcome a complicated patient... (and they work together at their hopspital and are heads of their departments)

Will check out all the links and look into the suppllements mentioned... Also, I used to drink lactaid milk with my cereal before I got sick - maybe I could tolerate it - worth a try!

(and Mrs. D. - on the J tube - I agree - I do belong to a gastroparesis support group on line - and I know without testing first to see if my intestintes can tolerate the feedings that the tube will be just as bad -- BUT - again, the doctors get so bent if I suggest this to them....)

Aussie, also, what is SF?????

So, this group is truly a better help then them in this case..... I'm going to follow up on all of this and truly appreciate the hellp and suggestions......

(my goal is just one nausea free day - then we go from there!!!!!!!!!)

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