Freesia - I'm sorry to say that I know exactly how you feel.
I'm in limbo too. Most tests show as normal but a few point to something being wrong...just not pointing to exactly what.
I'm sitting here right now feeling extremely dizzy and fatigued. Lots of painful numbness too. But no answers, no treatment...
I've been going through this for almost a year now. It definitely stinks to say the least.
Lots of

to you. Keep looking for answers, you know there is something wrong, eventually the MDs will figure it out.
Gaia