Quote:
Originally Posted by cindi1965
Excellent answer! Yes, I too, have been through a ton of doctors and only one has seen my leg in a full blown flare. My family MD has done more for me than any other doctor I have seen. He has MS, so he understands all that I have been through. It is a crazy ride with RSD/CRPS, but you have to keep looking and never give up finding a doctor who will listen. That's why I love it here on this board because everyone listens and understands. You are definately among friends here. Good luck and never hesitate to ask questions here or with your doctors. 
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Hi again,
I was just wondering if any of you have ever done any research about amputation? I have begged the doctors to do that in hopes that I would be able to get a prostestic so that I would atleast be able to be mobile. From what Ive read about amputation there is phantom pain but the pain that I have on rainy days cant even come close to the phantom pain that they talk about. I would really appreciate your view on this & if you've read anything about this. Hubby & I talk about it on a regular basis but we would appreciate someone else's view.
I know that it sounds desperate & I have given it alot of thought---this pain is getting the best of me & Im really trying to fight it. I just want to be able to get into the tub or shower & not have to worry about the water causing me pain. When water hits my leg, it feels like a volcano. It burns anyway but the water makes it worse. I can't tell you how nice it is to be able to talk to someone else about this, because my family has no idea of what I go through on a daily basis. Hubby & I both hurt---he has RA & he has to help me which I know causes him pain but he does it everyday & doesnt say a word about the added pain. I really dont know what I would do without his love & support that he gives at all hours of the day. Even in the wee hours of the morning when Im crying in pain.
I really appreciate the responses that you all have given me & it really means alot that someone else can share what we go thru & not be judged. Thanks again & hope to hear from you. It helps me tremendously to know that Im not alone. Janet