Thank you so much for your supportive replies.

NurseNancy - I do keep a sx journal, and will organise it to take to the neuro on Tuesday. H aven't seen her for 2 months and a lot has happened since in terms of new sx's and a major flair up fo sx's.

I have fortnightly counselling nowadays, and she's been good in terms of practical advice for dealing with the sx's. eg, "hire that chair at the shopping centre - treat it like I have a broken leg, and not be embarrased."

notasperfectasyou - thanks for the link. I've seen that paper in one of your posts before. I started to go through it, and cross off or highlight things to the best of my limited medical knowledge!

Gaia314 - thank you. It's awful isn't it? 12 months is too long for limboland. I hope you get answers soon.

braingonebad - your advcie was wonderful. thank you so much. Yes, I know with my head this is what i have to do, but my heart is struggling to adjust. I can't continue to have my life on hold. This year has passed me by already and I need to live with the 'new normal'.