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Old 09-27-2009, 12:02 PM
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Hope15 Hope15 is offline
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Join Date: Jan 2009
Location: San Francisco Bay Area
Posts: 236
15 yr Member
Hope15 Hope15 is offline
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Hope15's Avatar
 
Join Date: Jan 2009
Location: San Francisco Bay Area
Posts: 236
15 yr Member
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Quote:
Originally Posted by dbrow View Post
I wonder if any of the members can report improvement or resolution in burning mouth syndrome, and, of so, how long did it take? I'm not talking about taking meds to address the symptoms. I'm really interested in knowing if the nerves ever healed.

My neuro says my burning tongue (also lips, hard palate) is due to small fiber neuorpathy -- damage to cranial nerves. I also have confirmed small fiber neuorpathy in my feet and hands. I've had the condition since April 2009.

My neuro sees about one case of burning mouth a year (she works in a large city clinic with lots of patients) and says that in a "couple of years" it usually goes away. I've also seen research stating that spontaneous, but partial, recovery happens six to seven years after onset in about two-thirds of the cases.

When my neuropathy first started last November of 08, I had attacks of burning lips along with my neuropathy. It would come and go, but I haven't felt it in quite awhile now. It was confusing to me because along with my neuropathy, I was experiencing intense menopausal symptoms. Burning mouth (lips, tongue, etc) is also a menopausal symptom, so I didn't know which one it was. I'm just glad it's died down for now..
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