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Old 09-28-2009, 08:52 PM
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Default Working

I continue to work with MG but with a different schedule...I am self employed so I can schedule my hours as needed. Half of my work is physically demanding the other half involves sitting at my computer. I work about 6 hours a day, 7 days a week with a rare day off (as opposed to 4 to 5 days per week at 10-12 hrs per day...I miss my long weekends).

Sometimes it feels like too much and I feel like giving up, but I am still working. Every day I consider disability, but my doctor doesn't think it is necessary, and also I love working. In the back of my mind I really think I should stop working, at least so many hours...

I have other things that cause me stress which makes my MG worse sometimes. Sometimes I am so exhausted... But I can't stop working without some kind of financial help. I am still trying to figure out what to do. With Mestinon at least I can work for now and hope my MG doesn't get worse.
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