Welcome to the forum! It's scary having an incurable disease and a new baby. I started having symptoms right after my daughter was born and was dxd when she was 7 months old. I've read that it's not uncommon to have a flare after childbirth. Taking care of her was a bit nerve-wracking because of weakness in my hands and arms - she started walking at 10 months purely out of desperation, I think!

I just want to say: don't think that any symptoms you may have now are necessarily permanent. Speaking from my own experience, it's possible to have a very bad flare after giving birth, and still remit to pretty near normal. So don't panic!

I don't blame you for not wanting another spinal tap. Horrible!!!!! I hope you find a good neuro you can work with.