BTW - For those that are on Medicare here are the numbers that I came up with when I did the cost analysis. Mind you, I was very conservative when I did these calculations. In otherwords, I did not include my PT or neuropsych testing. I did not include my labs that I have to get done every 6 months, yrly woman check ups, and mammograms as I didn't have the amount on my reports.

Medicare Premium - $96.40/mth
Medicare Part D Premium - $44.00/mth
Meds Deductible - $4350/yr = $362/mth
Dr. Visits = $976/yr = $81.33/mth (This is based on 4 neuro visits a year, 2
PCP visits/yr and 1 urologist visit/yr)
Total = $583.73/mth

Now should I get sick or have to go to the hospital or anything out of the ordinary I would have to meet the $3900 deductible for Medicare. Take away my conservative dr visits and add in the Medicare deductible of $3900 and the monthly total changes to $827.90!

I did take the yearly total and broke it down by month. While some months I wouldn't go to the dr but I would have to put aside money for the dr visits or my premium. The yearly total for all medical garbage on the conservative side is around $7,000 and on the full blown side it would be almost $10,000. There goes my SSDI - all to medical costs.

Dang it all! I am not allowed to have a flare that requires PT, hospitalization, and steroids. (Which by the way, the neuro said if I require steroids I would have to be hospitalized because of my bad reactions to the steroids. We made an agreement that the only time I will do that crap again is if I lose my eyesight completely. ) I would not be able to cover the costs.

I share this with all of you because I know some of you are in the same boat as I am and your costs are very similar to mine.

Mr. President, here I come. LOL Seriously, I am going to put these calculations in my letter. Hopefully I calculated correctly.