Quote:
Originally Posted by Joanmarie63
I don't take IV IG so I don't know. You say you have been taking it 4 years now and lately your MG is acting up, is it possible you are going into remission and your MG is acting up because you don't need as much medication? I know that is how I figured out I went into remission, as my MG started getting worse, so the Dr. and I agreed to wean off the meds and bam it turned out I was in remission and had to much meds.
So talk to your Dr.  and good luck! |
Really? Well, I never thought about that because for the past 4 years while on IVIG, Mestinon and Cellcept I have been symptom free and then 4 months ago I started to feel weakness again. I actually went to a MG specialist today because my Neuro wanted another opinion on my treatment plan because he too is a little confused as to why after doing so well for so long, I started having symptoms again.
She actually suggested that maybe I should go back to having my IVIG every three weeks instead of every 4 weeks. Now I am not so sure what to do. I see my Neuro next week to discuss her suggestions.
I do know that in addition to being weak, I keep having periods of just feeling overall yucky. Not like a cold or fever or anything but its a feeling that is hard to explain.
I'm just so weird sometimes.